Kevin had a good Christmas and New Year with his family. Shortly after the New Year, he developed new subcutaneous nodules in both thighs and pelvis. They are causing considerable pain, and making it difficult for him to walk. He is undergoing radiation treatments to these sites of disease. For pain, he has an implantable epidermal pump that is keeping the pain under control. Kevin does not want to undergo any further therapies. Kevin finished his vaccine therapies in November of 2008. None of the old lesions have recurred, but he has multiple new subcutaneous lesions. The lesions in the pelvis and thigh are causing the most problems especially pain.
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KEVIN PASSED AWAY ON FEBUARY 18TH. 2009! THANKS FOR EVERYONES SUPPORT! I was able to see Kevin in January he had a smile on his face that day! He didn't want Rae & I to see him in pain I'm sure. I feel that Kevin made leaps towards to future of helping find some help for future patients. Maybe not a cure but info to help the doctor move on in finding the person to try & help. Thank you very much to the Doctor!! You did give Kevin a few more years to spend with his family! Thanks to everyone for your prayers!
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